Dancing with the Dead.

It’s been a weird month. Granted they’re all weird months when you’re terminal, but for whatever reason this one especially so.

Almost every night for a few days now I’ve having really vivid dreams that include people from my past who are dead.  This morning I woke up and it took me a good five minutes to realize who my daughter was or why she was there, as I was laying in bed with a friend who had died years ago from cancer. They’re all like that. Bizarre.

This is now the second week of being on Selinexor. My doctor managed to get me the drug via the compassionate use deal, which is pretty crazy. He said the company was awesome to work with, though, constantly asking what they could do to make it easier, etc., so props to Karyopharm. That’s no bullshit either — I hope this works for obvious reasons but I really appreciate their attempt to keep me around for my daughter for a little longer too. I’m not sure when we do the next MM tests but my fingers are crossed.

Not sure what else to talk about, really. I’ve felt like Hell all week and just been dealing with 1,000 little petty things, stupid things, useless things. Certainly nothing to get into here. I just game, hang with the kiddo and try to stay alive through it all.

Literally.

Author: uwfacepalm

Father, husband, portfolio manager, cancer victim (multiple myeloma since 2013). Trying to navigate this goddamn disease as best I can while enjoying what time I have left via those relationships, friends, the UFC, gaming, MMJ, diving and helping teach it before this all went down as a PADI Assistant Instructor and a Dive Guide at the Denver Aquarium (well, before my white blood cell count went to shit thanks to the chemo/disease).

2 thoughts on “Dancing with the Dead.”

  1. Just checking in here because I didn’t see you on the Facebook, jerk.

    Jeremy S posted a video compilation of scuba divers petting seals and I had two thoughts, one being “a leopard seal would totally eat your face if you tried that shit” and the other being “scuba…Rich has been diving, I wondered if he ever petted a seal.”

    Like

    1. Hey Sanya! I’ve missed you! And while I’ve scuba dove all over the world I”ve never encountered a seal, but I have several friends who had and said they were crazy friendly. I need to post on Facebook more when I have a blog post, something just made me feel icky recently doing it. But I will try to remember to start up doing so again, and I apologize.

      Like

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