Just a quick update. Other than some nausea and some 4 am hi-jinks with a separate IV things are going smoothly. Not enjoying the Dex at ALL even though I am in a cheery mood, really. Hoping the drug who’s name I’ve forgotten since Monday is helping with that.
The biggest issue, really, has been boredom. When I’m on high-dose painkillers, my usual regimen for being in the hospital (due to the flu or pneumonia), the little aches and pains don’t bother me. I’ve found this time I can’t get super comfortable, so I’ve been sitting in a chair in my room on the laptop when I can. Sadly I have a brand new lap desk sitting at home but everyone I know outside of the hospital that would bring it down here is sick =/
Second would be the Dex … normally I would get 40 mg a week from what I’ve experienced with with it before. With this chemo I’m getting 40 a DAY. Let’s just say my restless legs have started their own band. I’ve also put on over 15 pounds in 3 days!!! All water weight and being retained by the various chemicals, but now I’m on Lasix which helps you pee.
That’s a pill btw, not the eye surgery. My nuts see just fine.
One risk I think I talked about before with this, and I keep forgetting the damned name of, is that the PACE works quickly and explodes the bad cells (and some good ones too I’m sure). So the nurses and doctors monitor various things like calcium and magnesium (think that’s right, I’m a lil’ fuzzy). Anyways, my calcium is up so hopefully that means this is doing some work — that’s part of my good mood. If you have to go through this it might as well work, right?
I know the really bad side effects are days 7-10 once I’m home, but keeping my spirits up.
THIS. WILL. FUCKING. WORK.
That’s my prediction.
The nurses here at PSL are great on the cancer ward (and presumably elsewhere here) and have made this a lot easier. Quick responses, intelligent ideas, etc. Today’s nurse, the awesome Tara, is usually a charge nurse AND she lives with a coordinator for my care so I know I’m in good hands. Add to that Kellie and Rita (mostly adding these here so I don’t forget the names for a thank you, btw) and it’s been a pretty smooth ride.
Been doing a ton of walking every day as well. Not sure what that accomplishes but it breaks up the boredom and seems to be appreciate by the nursing and doctor staff.
Man this is a Facebook update, not a richvsmm post. Guess that’s alright sometimes. If it helps you rest easy that I haven’t turned into a Hallmark card, though; I did send Congressman Ken Buck from Colorado a “Rich” Tweet yesterday:
@RepKenBuck It’s not enough that you voted for AHCA, then you send me an email to brag about it? I’m a cancer patient, you fucking assclown.
— RichVsMultMyeloma (@richvsmm) May 23, 2017
If it helps, though, my 5 1/2 year old Facetimed me yesterday without her mom’s help … after she got bored she just started staring at the TV over the top of the iPhone though so we cut it short, heh.