We’re about a week and a half out of the colon resection surgery, and I just wanted to post a quick update.
So the biggest news, really, is my daughter has croup. Not to take any pleasure in that because it breaks my heart whenever she coughs, but I’ve managed to avoid getting sick! Guessing that’s a combination of the IViG and not being on chemotherapy, but I’ve also gotten a lot better at being OCD-like in washing my hands in the last few years. It’s difficult, however, to have to keep turning down her invitations to do stuff due to the pain in my stomach. She’s being a good sport though — man if I had a cough like that I’d be, well actually I think I’d be in the hospital because I would have ripped all of my staples internally and externally. Hell I’m terrified when I sneeze.
Met with the surgeon on Friday (27th) who is happy with my progress and took out about 2/3rds of the staples (then added some tape and glue). Have another appointment this coming Friday presumably to get the rest removed.
This hurts. Much like the understatement that “multiple myeloma causes fatigue) always feels like, saying this hurts feels like an unworthy explanation for something fairly monumental that even adding a f-bomb before it doesn’t quite cover. I’ve been in some level of constant pain every waking minute since the surgery. My home remedies and the prescription Dilaudid take the edge off but that’s about it. Never really experienced something like this, and it’s put me in this zen-like state of trying to shorten my perceptual time-horizon to the next few minutes and just trying to be comfortable and philosophical about it all.
That’s about it … I have a few things percolating in my head that I’d like to get on paper at some point but quite frankly just sitting here hurts, heh — I have to do some serious improvisational yoga to just stay remotely comfortable when I’m not laying down and I try to avoid that too too much since just laying there isn’t helping me heal (supposed to be walking, etc.). Need to contact the oncologists here too and get that ball rolling again, which I’m trying not to think about.